Posts

Showing posts from October, 2025

We got busy :-D

Apologies for the delay, I didn't realize it's been like 2+ weeks since my last update.  We've been busy!  For those of you behind--we've had Scarlett's 8th grade volleyball championship (they wonπŸ†) her 14th birthday, Vivian's NHS induction, Tom's 11th round of chemo...and likely a few other things happening that I'm forgetting πŸ˜‰ We are all still hanging in there!  From Tom's chemo visit last week (10/15) he was up slightly in his weight at 148lbs and his CA 19-9 was 175 (previously 276 on 10/1) so continuing to drop which is good!  This last round of chemo has been a bit tougher on him or the shift in weather or both.  He is continuing the cold sensitivity in his hands longer and has just been pretty fatigued but also not sleeping great.  It could be the chemo effects...or that we've been busy...or all the above!  His appetite has struggled to bounce back as well which is typically doing better by this point.  So we'll see how things go th...

PET results and chemo #10

Image
 As mentioned previously, our actual visit to Mayo was a bit anticlimactic.  However, on the positive-ish note, Tom had to go back on Tuesday 9/30 for his PET scan and his results continue to look good! We could see the results in the online portal late Tuesday/early Wednesday morning and our local team at Mission Cancer agreed the results looked really good.  We didn't hear from Mayo until Friday via the portal, but the surgeon was "pleased" with the results πŸ˜‚ and he reiterated to continue our current treatment plan.  There weren't any new concerning spots, the tumor activity continues to trend downward with parts of it matching the "background" organs--so hopefully it's dead or mostly dead, which is obviously the goal.  His stents are both still patent and doing well.     We go back after the next 4 rounds of chemo, in November, for a day trip to get lab work, a CT, and visit with the surgeon...and then a few days later to return for the PET sc...